My Son Doesn’t Want Fixing. He Must Be Accepted. – Hello Weblog! I am Dad.

I share tales about elevating my nonverbal son to indicate the world who he’s. My objective, in every story, is to clarify the fact and sweetness of getting a boy like him in our lives.

These posts are usually not a plea to assist me “repair” him. For a lot of with out somebody like Lucas, that will seem like a urgent want.

It isn’t. Fixing my son is just not a consideration as a result of he doesn’t want fixing.

That phrase, I do know, feels like a cliché you learn on autism guardian T-shirts. It sounds manufactured to drum up much more help for energy and independence. The world bites its backside lip, wells up its collective tears, and sends a solemn salute to this guardian so courageous within the face of hardship.

However that too is improper. Once I say my son doesn’t want fixing, it’s not a catchphrase or a chunk of quotable feel-goodery. It’s a reality.

Repair implies that there’s something damaged. With regards to Lucas, nothing is damaged.

Some may level to his lack of speech as an issue that wants fixing. I can perceive that perspective. For years, I had the identical ideas.

When Lucas was little, the lacking phrases felt like his greatest impediment to me. If solely he might converse, we’d all be nice. He could be nice. It could all be mounted.

It took a couple of years to understand that phrases don’t equal communication. He might spout off the dictionary, but when he can’t inform me what he needs or wants, they don’t seem to be as dependable for him as different types of communication.

He nonetheless has no phrases and, in the long run, that was not one thing that was fixable. As a substitute, it was one thing that we tried to show him. When he couldn’t imitate verbal language, we taught him to make use of communication tablets, hand gestures, and PEC boards. We didn’t repair the dearth of phrases. We taught him a greater system.

His lack of speech was not one thing damaged. It was, and continues to be, a distinct method he is aware of methods to share himself with others. Whether or not it’s bodily, psychological, or just a lack of awareness, spoken phrases are a far-off idea to him. So we didn’t power him to work in our system. We constructed a system that works for him.

That isn’t fixing.

Autism is a elementary a part of who my son is. His perspective is exclusive and, in some ways, awe-inspiring. By means of Lucas, I study that there are methods to see our environment that I by no means thought-about. The glare of a glass door, practically invisible to these of us not searching for it, can seize his eye and ship him over to look at it from each angle. My son sees magnificence in issues we by no means discover. I see magnificence in how he notices them.

As a toddler, I assumed Lucas’s worldview simply wanted steering. I’d watch him taking part in with a toy “improper” and attempt to appropriate him.

He could be spinning the wheels on a rolling toy phone and immediately SuperDad would swoop in to indicate him how.

No, Lucas. Look. It is a telephone. You choose it up. Howdy? Howdy?

He would watch me put the telephone to my ear and faux to have a dialog. Then, the second I used to be accomplished, he would take it again and spin the wheels once more.

After many makes an attempt, I got here to a conclusion. He doesn’t want me to Dadsplain this to him.

He will get it. He sees me. I had already taught him to mimic different motions up to now. Whether or not clapping or waving, Lucas had no challenge studying new actions and actions. We had already had successes in that space.

If Lucas was not imitating me with that toy telephone, it was as a result of that was not how he noticed it. That was not how he wished to play with it. He was not having an issue. He was not going through a difficulty. Nothing about it was damaged.

The identical will be stated for his beginning and stopping of YouTube movies. Take the pill and attempt to get him to look at it as a easy program and he’ll patiently wait till you might be accomplished together with your presentation earlier than hitting that pause button once more. There is no such thing as a damaged bridge to restore. This isn’t a couple of lacking piece.

That is who he’s. It’s what makes him comfy and what brings him enjoyment. My job was to not break that spirit. I don’t assume I might, and I’d not wish to if I used to be capable of.

Are there areas of Lucas’s life that I wish to assist him do higher? After all. However educating somebody to tie their sneakers is just not fixing them. It’s educating them. I’m a guardian. That’s what we do. In case your child picks one thing up at two years outdated, that’s nice. In case your child remains to be struggling at fifteen, you don’t shrug your shoulders and say, “Powerful, child. I’m retired.” You retain going. You retain educating. You assist till he will get it or till you bodily can’t anymore. There is no such thing as a time restrict on serving to your little one study.

The opposite factor to know is that Lucas tries to tie his sneakers. There are duties that he works arduous to grasp. He desires to do them the fitting method. In these circumstances, you by no means surrender on him.

Lucas’s method of seeing the world doesn’t want fixing any greater than somebody’s neurotypical, football-obsessed child wants fixing. We love them for who they’re and work to make them the perfect model of themselves doable. In spite of everything, we’re all dad and mom. If you don’t worth who your little one is deep down, then what are we even doing right here?


If this story resonated with you, I speak extra about what modified after my son realized I used to be actually listening on this week’s episode of
Hi Pod! I’m Dad.

READ NEXT: It’s 4:30AM, and I Just Learned Something About Autism Appreciation


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